Finally... a diagnosis?

I took Rey, my 3 year old son to the Neurodevelopmental doctor for a follow up. They did the routine development tests, and he is mentally and cognitively the age of 16 months (he is 3 years old now). I have been waiting for a diagnosis on his global developmental delay, white matter disease, etc. but still no words from the Doctor.

Days after the Dr's visit, I got in the mail a routine copy of a letter sent to my son's physician. I started reading... and there I saw the diagnosis. Or is it just a fancy name for my son's Global Developmental delays? Congenital Encephalopathy. Doesn't sound good. I am scared. What does this mean? I googled it, but it didn't make sense. When my son was born, he was perfect! The only issue was his feeding; he was not able to feed properly. Now, after researching on his disease, I know for a fact that his feeding issue was related to low tone in the muscles of his jaw area (which he still has) that may be caused to this Encephalopathy. But it doesn't end there. He has some type of seizure that is related to paroxysms, and myoclonic jerks. So maybe that Encephalopathy is a fancy name after all; because last time I was in the Dr. they didn't know what to do with my son; extensive genetic tests have been made, and everything came back negative, thank God. For now, I will just leave things to God, love my son and spend more time with him, and feed him as whole and natural as possible. Hopefully we can overcome all these delays, seizures one day with nutrition.