Two days ago, I had to take my son, Rey, to the hospital for an endoscopy procedure. It is his second time having this procedure; the first one was done in 2006, where he was diagnosed with Eosinophillic Esophagitis.
As I mentioned in an earlier post, there had to be something that would be revealed with this procedure. Rey coughs a lot, and we thought it may be because of his pica; he eats carpet fibers, paper, anything he can get a hold of; even his plush blanket; which I had to switch for a comforter.
His GI doctor performed the procedure, and when he came to pick us up from the waiting room, I know it wouldn't be good. Dr. showed us the pictures of his esophagus, and there were the eosinophils, and the rings that indicate his Eosinophillic Esophagitis getting worse. He quickly suggested feeding tube, and I refused. My son loves to eat; he wouldn't say no to any fruit; he loves rice, beans, avocado, carrots, sweet potatoes. I know that feeding tubes in some cases are neccesary, but not for my son! He is way too hyperactive (and he only consumes sugar from fresh fruit) to have a feeding tube. Dr. was very understanding, but recommended the Elecare again.
I took the pictures to my family, who still feeds him fried food such as nuggets from time to time, and showed them how that food affects his esophagus. I think it was a wake up call for them. I removed soy completely from his diet, and for now, I am trying the rice milk again, although he doesn't seem to like it much. I also am giving him back the Living Fuel powder too.
Thursday, January 29, 2009
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